More information I'm finding that could relate to our specific case can be found at the following links:
http://vestibular.org/enlarged-vestibular-aqueduct-syndrome-evas
https://www.nidcd.nih.gov/health/pendred-syndrome
https://ghr.nlm.nih.gov/condition/branchiootorenal-branchiootic-syndrome
Articles:
http://hearinghealthmatters.org/hearinprivatepractice/2016/auditory-fatigue-hohs-fade-fast/
http://www.ndcs.org.uk/family_support/education_for_deaf_children/education_during_school_years/tiredness.html
Organizations:
https://directory.nidcd.nih.gov/ByKeyword.aspx?key1=30
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